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What is a kidney
worth?
Christian
Science Monitor
By Abraham McLaughlin, Ilene R. Prusher, and Andrew Downie
June 09, 2004
Every
day, 17 Americans die of organ failure. In Israel, the average
wait for a kidney transplant is four years. In response,
a global gray market has bloomed. In India, for example,
poor sellers are quickly matched with sick buyers from Taiwan.
Critics call it "transplant tourism." Proponents
say the market is meeting a need.
The Monitor follows three men: an unemployed Brazilian and
an ailing Israeli, as well as a South African investigator
who helped bust an organ-trafficking ring.
The case raises anew hard legal and ethical questions, such
as: Who owns our bodies? Should it be illegal to sell an
organ if it could save someone's life? What is the government's
role in protecting two vulnerable groups - the poor, who
are willingly exploited, and the sick, who are desperate
for healing?
On a warm afternoon in Recife, a city on Brazil's northeastern
coast, Hernani Gomes da Silva sits alone in the Bar Egipcio,
quietly nursing a drink, ruminating about his predicament.
He is 32 years old and still lives in his mother's two-room
house. Rain comes in through the roof, and cockroaches and
rats scuttle across the cement floor. He has three kids,
a wife who loathes him, and a mistress 20 years his senior.
He is unemployed with no money, no skills, and a criminal
record. The future is bleak.
Suddenly the words "we pay people $6,000" leap
out at him from behind. His radar clicks on.
"I don't mean to eavesdrop," he says, turning
to the bald man sitting at a nearby table. "Were you
talking about earning money from transplants?" He has
heard of others in Recife who have sold their organs and
can't believe his good fortune.
"Yes," says the man.
"Which organ?" Hernani asks.
"The kidney. Why, are you interested?"
"Of course I'm interested."
"What blood type are you?" the man asks.
"O-positive," says Hernani.
The man nods - it's the most compatible blood type. It's
2002 and Hernani has passed the first test for selling a
kidney to an organization that will stretch across three
continents; make hundreds of thousands of dollars for the
people behind it; and rouse the interest of police, politicians,
ethicists, and doctors around the world.
Soon Hernani is walking home, dreaming of a motorbike and
a roof that doesn't leak.
* * *
More than 5,000 miles away across an ocean, Arie Pach, a
stout Israeli lawyer in failing health, sees his future
flash before him. It makes him shudder.
As he heads to an appointment on the sixth floor of Jerusalem's
Hadassah Ein Kerem Hospital, he walks past the dialysis
ward. Below the glare of fluorescent lights, the thin, feeble-looking
patients sit in special armchairs hooked up to oven-sized
machines that click and whir and simulate the job of the
human kidney: They clean the patient's blood. It's a life-preserving
process for people whose kidneys have failed, but they have
to be connected roughly three hours at a time, three days
a week.
In February 2002, Arie's doctors told him his kidneys were
beginning to falter. By early 2003, he's had minor surgery
to prepare for dialysis, but he is already formulating plans
to avoid the ward. "I don't want to be one of those
people with big needles in my arm, getting my blood changed
in and out of the machine like a car going for an oil change,"
he thinks.
Then there's the expense of dialysis to the healthcare system
- about $45,000 to $50,000 per year. And only some 10 percent
of dialysis patients live more than 10 years, according
to the US National Center for Health Statistics. Arie has
too many things left to do in life. He loves to travel abroad
with his wife. One of his two sons will marry this summer.
To see any grandchildren, he's got to stick around. But
the doctors warn him that his blood could soon start to
become toxic. They give him two choices: dialysis or a kidney
transplant.
* * *
In the seaside resort city of Durban, South Africa, private
investigator Johan Wessels is working in his home office,
plinking away at the computer keyboard. The phone rings.
It's a woman from the health department. She wants to know
if he'd be willing to work on a case under something called
the Human Tissue Act.
In 24 years as a police detective and private investigator,
Johan has tackled all kinds of cases - smuggling, embezzlement,
bribery. He's achieved a 98 percent conviction rate. But
he's never heard about this act and has little idea what
he's getting into as he says yes.
Hanging up, he yells to his wife, Carol, in the kitchen.
"That was the health department. They want me to investigate
some case about human tissues."
His partner of 29 years is pleased. "I've been praying
all morning about you getting more work," she says.
Both are "reborn Christians." They read the Bible
daily and sit up front at church on Sundays.
His curiosity piqued, Johan is faxed a copy of South Africa's
Human Tissue Act and scans it.
Sect. 1: "[T]issue means ... any flesh, bone, organ,
gland, or body fluid...." Sect. 28: "No person
... may receive any payment in ... the ... acquisition ...
of any tissue...." Section 33: Violators "shall
be ... liable ... to a fine not exceeding 2,000 Rand or
to imprisonment for a period not exceeding one year...."
One year in jail or a fine of about $300. This thing has
"no teeth," Johan thinks. Maybe that's why they're
buying and selling organs in South Africa.
It's June 2003, and Johan is embarking on what will become
one of the toughest cases of his career - not only a test
of his detective skills, but also of the ethical and religious
values he holds dear.
Hernani goes to South Africa
Hernani has big dreams for the $6,000 he's expecting to
get for one of his kidneys. But he also has doubts. One
day as he's walking home - wondering if the South Africans
will take a lung or cornea, too, or just abandon him in
a country where he can't speak the language - he bumps into
a friend who's driving a shiny white Volkswagen. He's heard
through the grapevine that this friend is one of dozens
from Recife who went to South Africa and came back alive.
The early ones got $10,000 for their kidneys, a fortune
in a neighborhood where many earn the minimum wage - about
$1,000 a year.
Hernani gets in the car. He is not normally the inquisitive
type, but today he pelts his friend with questions.
"How much did you get paid?" he asks.
"Do they pay in advance?"
"How were you treated?"
"What is the operation like?"
"Do they take care of you?"
"Will I be OK?"
The friend says all the right things. Ten minutes later,
Hernani gets out of the car, his mind at rest. He is going
to South Africa to sell his kidney.
* * *
In the months since they met in Egipcio's, Hernani and the
little bald man - he calls him Captain Ivan - have become
fast friends. Ivan Bonifacio da Silva, a retired police
officer, has taken Hernani under his wing, patiently explaining
how the kidney switch works, and assuaging his lingering
concerns.
He's also been shepherding him into a whole new world. He
tells Hernani where to get the tests to prove he's healthy
enough for the operation. He's with Hernani when he gets
the passport that will allow him to leave Brazil for the
first time in his life. And in October 2002, on the eve
of Hernani's trip to Durban, Captain Ivan hands him $500
- and assures him there is another $5,500 waiting for him
when he gets home.
Six thousand dollars. It's somewhere near the average going
rate for kidneys in today's global organ trade. Palestinian
men who sold their kidneys in Saddam Hussein's Iraq after
the first Gulf War got just $500 to $1,000. They helped
make Iraq the organ-trading hub of the Arab world until
the latest war broke out. In the slums of Manila, where
corneas, livers, and lungs are also offered for sale, kidneys
fetch about $2,000, according to Nancy Scheper-Hughes, cofounder
of Organs Watch, a group at the University of California,
Berkeley, that tracks the trade. Some Israeli organ donors
have gotten $20,000, she says. And a few American sellers
have gotten $30,000 to $50,000 for their kidneys.
But $500 is more than Hernani has ever held in his hands.
Captain Ivan tells him to make sure Daisy, Hernani's wife,
has enough for when he's gone, and to buy some new clothes.
Hernani hardly has to be told twice. Within an hour, he's
walking through the sliding doors of the Shopping Recife
mall and into a new life. The lights are bright and the
giant windows are filled with personal beer kegs, colorful
shirts, and tiny cameras that seem to seduce him, whispering:
You've got money now, you can afford it, come in, buy me.
Hernani quickly succumbs to the mall's sirens. He buys five
or six polo shirts. He buys a new pair of lace-up shoes.
He buys two pairs of jeans, tripling the number of long
pants in his wardrobe. He goes to the food court and fulfills
a lifelong dream of buying a cappuccino. At the supermarket
he fills his cart with rice, beans, bread, milk, eggs, and
the ultimate luxury food - meat. For about $2 he buys enough
beef to feed his family for a month.
This is just the beginning, he thinks, as he sits down later
that night at a fancy restaurant. Things are different now.
I am somebody. I'm a consumer.
* * *
But when he opens the metal door to his house just after
midnight, he realizes money can't change everything. Daisy
is lying on the carpet they call their bed. She's angry.
She knows he's been to see his mistress, Antonia. And she
knows he has spent most of the money on himself, even though
it was supposed to be the down payment on their new life.
Yet no matter how much she has come to detest him over the
past few years, she can't stop herself from worrying.
"Don't go," she tells him as he lies down beside
her. "You don't know what might happen. They could
do anything, take anything. You don't know who they are
or what they want."
"Shut up," Hernani barks. "Let me go to sleep."
"It could be a trap, Hernani," she persists. "You
might not get out alive."
Actually, in this brave new world of kidney selling, donors
rarely die. But Daisy's fears aren't totally unfounded.
In India, about 2,000 people sell a kidney each year. One
study there in 2002 found 86 percent of organ sellers saying
they had significant declines in their health in the three
years after surgery. In the eastern European nation of Moldova,
some 300 peasants sold their kidneys between 1999 and 2002.
A study by Organs Watch found 79 percent of Moldovan donors
with health problems in the months and years after the procedure.
But in the darkness of their house that night, with the
promise of a payday to beat all paydays, Hernani ignores
his wife's anxious pleading. "Daisy, I'm doing this,"
he says, cursing her. More harsh words are exchanged, and
she flees to the next room to sleep with her son.
The next morning he pecks her on the cheek, slips quietly
out the door, and heads to the airport.
* * *
Hernani lands in the lush, hilly city of Durban, which sits
on the Indian Ocean. How different and luxurious things
are here, he thinks. The house where his hosts keep him
and several other Brazilian kidney donors is enormous. The
living room alone is bigger than his whole house back home.
There's even a hot tub. An interpreter stays with them all
day, and a facilitator buys them a CD player so they can
dance around the living room to Brazilian songs that remind
them of home. Sometimes the hosts take them out to dinner.
Hernani, who rarely has enough money to buy even pork, tries
ostrich meat.
October 2002 blends into November. Mostly, they spend their
days lying about the house, waiting for the call. When it
finally comes, Hernani is whisked off to St. Augustine's
Hospital, a sprawling modern complex set high on a green
hillside overlooking the ocean. He and the others are, after
all, here for business.
They are several of the roughly 300 Brazilian and Israeli
sellers that police say were brought to South Africa between
2001 and 2003. The syndicate was run, police say, by an
Israeli named Ilan Perry. He and the other organizers were
making hundreds of thousands of dollars in profits. They
probably picked South Africa because it has top-notch medical
facilities and one of the world's best transplant-success
rates. It also has weak laws regulating the sale of human
organs.
Hernani has signed lots of forms, including one that says
he's "related" to the man to whom he's about to
give his kidney. Finally he meets this man - an Israeli
named Amiram Aharoni - for the first time. Walking into
the room, it's then that Hernani understands the magnitude
of what he's about to do. Mr. Aharoni is all swollen and
pale. He cries when he sees Hernani. He's too weak to lift
himself up. But his wife passes along their message with
a tender hug. "You are part of our family now,"
she says. "From this moment on, you are our flesh and
blood."
The operation takes place on Nov. 26, 2002, and lasts several
hours. Lying in two nearby operating rooms, Hernani and
Aharoni undergo surgery at the same time. Hernani has three
surgeons operating on him because of the complexity of the
procedure, which sometimes involves removing a rib.
When Aharoni wakes up, he has a fresh kidney and a new lease
on life. When Hernani comes to, he feels a tightness where
the wound has been stitched shut. But three days later,
when he finally boards the plane back to Brazil, he is a
happy man. He is going to be rich.
* * *
That joy fades fast as he arrives back at his mother's house
in Recife. It's been almost 24 hours since his plane landed,
and Daisy is scowling at him. She suspects he's been to
see Antonia. She's both relieved and depressed to see him
alive and back in her life. She's tired of their sad marriage.
She's sure he doesn't really care about the three children
jumping around the street - or about Daisy herself, who
dropped out of school at 14 to set up a home with him. Even
after weeks on the other side of the world, the man taking
a red bicycle out of the taxi doesn't even look at her.
"Luiza,go and get yourself ready. We're going into
town to get you a bicycle," he shouts to his 9-year-old
daughter as he hands the new bike to his son, Hernandes.
Then he turns his back and walks toward the local plaza.
He's determined to have some fun. After all, he has money
in his pocket - $5,500 in crisp new $100 bills handed to
him by Captain Ivan under the table at a fast-food restaurant
near a local branch of Citibank.
For someone who has been poor all his life, money is to
be spent, not saved or budgeted. And spend it he does. In
the first few months of 2003, Hernani pays $1,700 to replace
the roof, the floor, the walls, the windows, and the wiring
in his mother's house. He uses $1,600 to pay off her credit
cards. Another $1,200 buys him a brand new Honda CG 125
motorcycle, which he insists the dealer deliver to his house
so his neighbors can see. On New Year's Eve, he buys Daisy
a new blouse and skirt. He figures that leaves him somewhere
between $1,000 and $2,000 to spend on drink and other women.
Life is good.
Paying a healthy stranger
While Hernani is busy blowing through his money, in Israel
Arie Pach is hoping to avoid a life tied to a dialysis machine.
But he's running out of options. He's been ruminating over
them since 1995 when doctors first detected a problem with
his kidneys. He knows that patients who get kidneys tend
to live longer than those on dialysis. So he considers turning
to his wife or sons for a kidney. Since they come in pairs,
a healthy person can live on just one. But his wife and
oldest son have the wrong blood type. His youngest son is
a match, but he has health problems similar to Arie's. So
getting a kidney from a related donor is out.
Another possibility: Signing up for Israel's national waiting
list, which already has more than 500 people on it. But
the wait time can be as long as four years for someone of
Arie's age - those under 18 get priority - which means most
go onto dialysis. For religious reasons, Israel's cadaver
donation rate is relatively low, although its rate of donation
among living relatives is above average. And anyway, organs
from live donors are more effective than cadaveric ones.
So Arie and Mary, his wife of 36 years, feel they have no
other alternative. They're left to consider paying a healthy
stranger for a kidney. Mary has been an operating-room nurse
for more than 25 years. She encourages Arie to find a living
donor. "If you go for a transplant at the very end,
after years of dialysis, your body is all worn out,"
she says. "If you do it before you get to dialysis,
you have a much better chance of the surgery being successful."
Buying a kidney in Israel is against Health Ministry regulations,
but there's no penalty associated with the rule - yet. As
in many countries, the legal ground is soft. Going abroad
for a kidney operation is perfectly legitimate, and in such
cases questions are rarely asked about how the organ was
obtained. Even under a new proposal that would punish brokers,
recipients would not be prosecuted because they're victims
of failing health and opportunistic organ brokers, says
Meir Broder, legal adviser to the Health Ministry.
For Arie, who has spent a lifetime practicing law, the ethics
of a kidney purchase are still complicated. He doesn't want,
for instance, to exploit a poor person who's just trying
to feed a family. Yet he's torn.
"Everyone is the boss of his own body, and if someone
healthy wants to give away one of his own kidneys, I can't
see why it shouldn't be done," he says. "There
has to be informed consent."
Then there's the religious element. Arie and Mary aren't
particularly devout, but they discuss the guidance Judaism
offers. Arie finally concludes, "There really is nothing
holy except for God and human life," and since "donating
an organ is saving a life," it's entirely ethical.
Religious beliefs often figure in decisions about organ
trading. They're invoked both to encourage and discourage
it. The Old Testament story of Hagar bearing a child for
Abraham (because his wife, Sarah, is "barren"),
is often cited as the first case of surrogate motherhood.
Some people use this scripture to justify paying someone
to be a surrogate for an organ, says Dr. Scheper-Hughes
of Organs Watch. Or as one Israeli doctor said to her, "God
performed the first transplant" when he took a rib
out of Adam and created Eve. In many Christian circles,
too, there's the belief that "your body is a gift from
God," says Scheper-Hughes, "or that you have use-rights
over your body, but that it belongs to God."
Yet one reason Israelis rarely donate organs after death
is that many Jews believe the body is sacred, and should
be whole at the time of burial. Orthodox Jews believe that
the deceased should be intact for the Resurrection they
believe will follow the coming of the Messiah. But views
are shifting.
"If someone needs to save his life and the only way
to motivate someone to help him do that is by financial
incentive, then I don't think they should prevent people
from doing that in order to save lives," says Robert
Berman, the founder of the New York-based Halachic Organ
Donor Society, which has enlisted prominent rabbis to encourage
donation.
"The fact is that people are dying and that there are
not enough organs going around to save their lives,"
he says. "There's a widespread misperception that organ
donation is categorically prohibited by Jewish law. It is
not. Jewish law supports saving lives."
Meanwhile, after many conversations, Arie and Mary agree
they're making the right choice. "This decision,"
says Mary, "completely changes the course of your life."
* * *
Arie soon discovers buying a kidney is a pretty easy path
to take in Israel. In dialysis units, in doctors' offices,
even in newspaper classified ads, the names of organ brokers
- people who arrange kidney trades - are an open secret.
For $60,000 to $150,000, a new kidney can be purchased.
Arie starts surfing the Web, looking at clinics in the United
States that do transplant surgery. A friend suggests a medical-advice
hotline run by an aide to an influential rabbi. "People
call him and say, 'I need an operation' and 'Who's good?'
" says Arie. He tries it and gets the name of a doctor
in Tel Aviv. Soon, he's put in touch with a broker who tells
him a transplant, done in South Africa, will cost $100,000,
with 10 percent paid up front.
It's a lot of money, but Arie figures he can at least manage
the down payment from his retirement fund.
Many Israelis, even those without great wealth or savings,
find ways to cover the cost. Israel's health-insurance funds
reimburse patients as much as $70,000 for any medical procedure
done abroad. Technically they're not supposed to pay for
illegal operations, but if it's done outside Israel, it's
off their radar screen. Critics say the health-care companies
are turning a blind eye to an international racket. Government
and health officials say there's no way to control what
a patient does outside Israeli territory.
There is an attractive economic component to this setup.
Paying $70,000 for one kidney transplant is far cheaper
than $50,000 a year for life in dialysis bills. But it's
more than money. The transplant recipient is healthier,
and has a better quality of life than a dialysis patient.
Some argue that since the trade is already flourishing,
and is difficult to stop, the best way to protect sellers
is to decriminalize it and create a regulated market. Michael
Friedlaender is one of Arie's doctors after the operation
and heads the kidney-transplant follow-up unit at Hadassah
University Hospital in Jerusalem. He once opposed organ
sales. Now he advocates a legal market.
Under the current system, he says, if something goes wrong
during surgery, or if the financial transaction turns out
to be a scam, neither the donor nor the recipient has any
legal recourse. A regulated system, he says, would change
that, and allow for things like malpractice suits, which
help safeguard the process.
In a free market, Dr. Friedlaender argues, it's unethical
not to pay for an organ.
"Someone's saving your life," he says, "and
you're not going to reward him? We pay for every other service
in the world." Donating an organ is one of the most
valuable services, "because it saves a life."
* * *
Only a few weeks after making contact with the broker, Arie
gets the call. "We have a donor for you in South Africa,"
the broker says. Then things move fast. Plane tickets are
delivered. He gives the broker a $10,000 downpayment, with
the rest payable when he's admitted to the hospital for
surgery. Suddenly he and Mary are on their way to South
Africa.
On April 8, 2003, they arrive at St. Augustine's. With its
warm yellow walls, highly polished floors, and views of
the ocean, the transplant ward is one of the most luxurious
in the country. They're struck by the professionalism of
the staff.
But they hit a snag.
It turns out that Arie's donor has high blood pressure and
is rejected by the syndicate. This comforts Arie and Mary,
and persuades them that the doctors and brokers aren't just
trying to scam them or the Brazilians. But the first donor
isn't the only Brazilian there. Arie and Mary often hear
Brazilian music wafting through the hospital hall, and the
TVs are tuned to soccer. After several days of more tests,
a suitable donor is found.
Arie soon meets the young man (Arie won't reveal his name)
who's going to change his life. He's tall, thin, and youthful.
He grins constantly. Through a translator he says he doesn't
smoke or drink. He just wants to improve his life by getting
married and going to college to become an architect.
As they talk, Arie keeps trying to remember how to say "thank
you" in Portuguese.
"Ob..., Ob...," he stutters.
"Obrigado," Mary chimes in.
Through his interpreter, he asks the Brazilianif he really
consents wholehearteldy to giving his kidney. The young
man smiles, and says, "Yes." He offers his hand
to Arie, and the two men shake as they are wheeled into
the operating room.
Surgery falls on the eve of Passover, the Jewish holiday
that celebrates the Children of Israel's passage from slavery
into the freedom of the Promised Land. As he's lying on
the gurney, being wheeled into the operating room, he whispers,
"Shma Yisrael," a Jewish prayer that affirms God's
oneness and the commandment to love God with all one's heart,
soul, and mind.
That evening, back at the hotel, Mary feels lonely and apprehensive.
Some local Jewish families have invited her to celebrate
Passover with them, but she doesn't feel like being cheery
and social. In her room, she lights some candles and reads
the Passover story. Perhaps the surgery will finally let
her husband find a new freedom of his own.
The next day she sees him, and he doesn't look well. He's
pale gray and connected to machines she's seen all her professional
life, but it's different when it's her husband. To her relief,
the doctors say the surgery was a success.
In the following days, Arie meets his donor again. They
pose for photographs. The Brazilian wraps an arm around
Arie, flashes a thumbs up sign, and beams. In his bright
red shirt, he looks like a fan whose team has just won the
championship.
The ring is busted
Unknown to him, under South Africa's 1983 Human Tissue Act,
Arie and his donor have broken the law. But the organ brokers
and doctors are the ones making the biggest profits - and
are the real targets of the police. Buying and selling kidneys
across three continents is, in some ways, the perfect 21st-century
crime. That's what South African investigator Johan Wessels
realizes as he gets further and further into his new case.
For one thing, it occurs in several jurisdictions, all of
which are thousands of miles apart. And it's hard to determine
where exactly the crime - handing over the money - takes
place. And if one country starts cracking down, the syndicate
can hop to another.
In working the case, Johan has teamed up with a group from
the elite Commercial Branch, South Africa's equivalent of
the FBI's white-collar-crime unit. The team is headed by
Capt. Louis Helberg, a reserved man.
By the middle of 2003, the team has a firm idea of what's
going on. Donors are getting $6,000 to $18,000 for their
kidneys. They're coming from Israel, Brazil, and maybe Russia
and Romania, given the Eastern European-sounding names on
the hospital records. Two doctors at St. Augustine's appear
to be heavily involved. It looks as if some of the South
Africans have pocketed as much as $450,000 doing more than
107 operations.
Police say the organizers meet 11 of the 12 criteria for
a "syndicate" - a criminal enterprise akin to
the mafia. There's only one criterion the group hasn't met:
no one has been killed, say the investigators.
* * *
After one long day working on the investigation, Johan,
Captain Helberg, and another detective head to a burger
joint. They get some weak coffee and fall into conversation
about the case.
"How far would you go if one of your kids needed a
kidney?" asks one detective. The question opens a debate
on the validity and ethics of the very law they've sworn
to uphold.
For most people, the initial response to buying or selling
a body part is revulsion. It's what bioethicists call "the
yuck factor." But the moral underpinning of that feeling
- which in turn becomes codified as law - is often hard
to articulate, says Walter Robinson, a pediatrician and
bioethicist at Harvard Medical School in Cambridge, Mass.
"It's a violation of 'naturalness,' " he says.
"But 'naturalness' is difficult to describe."
It can emanate from people's moral or religious values,
subtle prejudices, or tradition.
Personal or societal definitions of "naturalness"
can change, Dr. Robinson observes. They have shifted in
the US for instance, regarding interracial marriage and
homosexuality.
Revulsion aside, "If one of mine was sick, I'd do anything,"
even though it's illegal, Johan says, thinking of his two
children. "I'd borrow lots of money. I'd even sell
the farm," he says, referring to one of his favorite
places in the world, a 700-acre spread that's been in his
family for four generations.
It's a typical parental response - doing anything for a
child. In fact, growing numbers of doctors and ethicists
agree that people like Johan or Arie should be able to buy
kidneys, and that people like Hernani should be able to
sell them. They argue, for instance, that banning organ
sales robs sellers, who are often poor, of a rare option
to escape poverty. They also argue that high-minded efforts
to shield the poor from themselves can be paternalistic
or hypocritical. "If the rich are free to engage in
dangerous sports for pleasure ... it is difficult to see
why the poor, who take the lesser risk of kidney selling
... should be thought so misguided as to need saving from
themselves," says Dr. Friedlaender in Israel.
But as the detectives' coffee cools, they weigh the other
side, too. They wonder if rumors about "organjacking"
- people being killed for their organs - might be true.
Critics say the current system has already jump-started
a dangerous commodification of the human body, which could
turn the world's slums into reservoirs of body parts for
the rich. Today, in Manila's slums, the selling of kidneys
has led to sales of lungs and corneas.
As the detectives talk it through, Johan's views develop.
"Life is already really cheap in our society,"
he says later. "People will kill each other for a firearm
and a little cash." And if you start giving people
money for their kidneys, "you're going to start finding
a lot of dead bodies with no organs."
These kinds of gruesome scenarios are what seal Johan's
opinion. The detectives get up from the table, strengthened
in their resolve to break open the case.
* * *
A few weeks later, Johan adds another plank to his position.
As he's eating breakfast, he tunes into an American TV news
show. A reporter is interviewing a mother whose 17-year-old
son, as Johan recalls, was killed in a car crash. With the
mother's consent, doctors salvaged 47 organs and tissues
from the boy's body - corneas, kidneys, liver, lungs, heart.
"I didn't know they could get that many organs from
one body," Johan thinks to himself.
The reporter asks if the mother thinks she should be paid
for all the organs her son gave away freely. How could I
take money for them? Johan remembers her saying. God gave
each of us the body we use when we're alive. He gave it
to us for free. How could we charge someone else for part
of it? He calls his wife right away.
"This makes more sense to me as a Christian than anything
else I've heard," he says to her.
* * *
The detectives have been toiling for months now, slowly
piecing the trafficking puzzle together. But in late November
they get a major break. The police team gets a call, out
of the blue, from an officer at a nearby police station.
The cop has two Israelis with him. One is accusing the other
of stealing $18,000, and there's something about a kidney.
When the detectives later question the two men, they can't
believe their ears.
One man, known as S. Zohr, admits he received $18,000 for
agreeing to sell his kidney. He'd actually been lying on
the operating table at St. Augustine's, just moments away
from surrendering his organ to an ailing Israeli man named
Agania Robel, when he got spooked. Zohr jumped off the table,
grabbed his clothes, and bee-lined for the airport, trying
to take the $18,000 with him.
But then, a man named Shushan Meir, who later is charged
with being part of the syndicate, called the police and
told them Mr. Zohr was stealing the money. Mr. Meir apparently
hoped, strangely enough, that the cops would help prevent
this illegal deal from going sour. It was the final confirmation
the police needed to bust up the ring.
On the morning of Nov. 27, 2003 - a year and a day after
Hernani went under the knife - Johan, Helberg, and a police
team that includes a photographer and several plainclothes
detectives converge on the back parking lot at St. Augustine's.
They walk quickly up the hill into the facility's transplant
division.
Helberg, the team leader, announces that they have a search
warrant and will be seizing files. Johan adds that he's
an independent investigator looking into crimes committed
under the Human Tissue Act. He doesn't need a search warrant
and can look at any of the clinic's files at any time. He
steps into a side office where a whiteboard hangs on the
wall. Scrawled on it are two names - "A. Robel"
and "Rogerio Bezzera" - and today's date.
"What are those?" he asks Lindy Dickson, a staff
member who would later be arrested and charged with complicity
in the scheme. She tells him the two men are, at this moment,
on operating tables upstairs.
Robel. That's the guy who was left stranded when Zohr jumped
off the table last week, Johan realizes. And he's already
been paired up with another donor, a Brazilian named Rogerio
Bezzera da Silva. With this, Johan gets a glimpse of the
efficiency and sophistication of the syndicate. Only days
after one donor gets cold feet, the group has another one
on the operating table. This one, he will learn, is getting
only $6,000 for his kidney. Robel, the recipient, is paying
$45,000 for a new organ.
Police decide against arresting the two men while they're
on operating tables, but several days later, they make three
arrests. Robel, the recipient, pleads guilty. He's fined
about $770 and returns to Israel. Two apparently low-level
syndicate operatives, including Meir, are charged. One makes
a plea bargain, while Meir will be tried beginning July
13. Mr. Bezzera da Silva isn't charged, but he forfeits
his $6,000.
That same week, Brazilian police also arrest two Israelis
and nine Brazilians.
The $6,000 is gone
Nearly a year after his South African trip, every last bit
of Hernani's $6,000 is gone. Daisy sells popsicles to pay
the bills. Hernani sold his motorbike after sliding off
the road one rainy night and running into the back of a
truck. He now walks with a limp.
Hernani continues to see Antonia. There is no dialogue between
Hernani and Daisy, only the occasional monotone orders for
her to get the phone, go shopping, mind the children. He
will not hold 9-year-old Luiza's hand when they walk around
the neighborhood together, and he cannot, or will not, pay
for her to play organized soccer, even though she controls
the ball better than half the boys during their games in
the street.
Hernani's plight is common among kidney sellers. According
to the study in India, organ selling actually increased
poverty. Some 54 percent of sellers were extremely poor
before losing a kidney. A year later, 74 percent were still
in debt, and the average family income had declined by about
30 percent.
For Hernani, things could hardly get worse.
But they do.
On Tuesday, Dec. 2, 2003, Hernani, like 40 million other
Brazilians, is watching the nightly news on TV Globo. He's
had a tough day. He's heard that the friend with the white
VW, who was instrumental in convincing Hernani to sell his
kidney, was arrested in a surprise raid that morning. No
one knows why the Brazilian FBI would be after him.
Sitting on the couch that night with another friend, Hernani
discovers why. Police in South Africa have broken up an
international organ-trafficking ring, he hears the announcer
say. Authorities have detained 11 people in the last 24
hours and expect to make more arrests. The words "organ
trafficking" and "arrests" jump out at him,
just like that day when he heard a man behind him say: "We
pay people $6,000."
But this time he's full of dread.
"Man, you've got to get out of here," his friend
warns.
One word that keeps coming into his head: "Why?"
I have done nothing wrong, harmed no one. I crossed the
world to give life to a dying man. I sold only what was
mine. Why are they doing this? Why me? I am going to jail,
Hernani thinks to himself. Within minutes, he has changed
his clothes and slips out into the night. Soon he's banging
on the metal door of a local hot-sheet hotel, where rooms
are rented by the hour. The receptionist is surprised to
see a single man looking for a room, but he accepts Hernani's
credit card and hands him a key.
Afraid and agitated, Hernani lies on the grotty hotel bed
staring at himself in the mirror overhead. He's not reviewing
his decision to sell his kidney. He's not worrying about
the police finding him. He's worrying about whether he has
enough money in the bank to pay the hotel bill - about $7
per night.
* * *
As the investigation continues into 2004, Johan is still
unsettled about his religious perspective on organ sales.
As he drives home one night, he realizes he's had a change
of heart from his first inclination to "do anything"
to save himself or one of his family members, including
buying a kidney. Knowing what he knows now, he'd try to
figure out something legal. For instance, he, his brother,
and his best friend all have O-negative blood. And they've
got an understanding: If one of them ever needs blood -
or maybe an organ - the others would step up. He knows people
who have done so. A couple of years ago, a woman at his
church donated her kidney to a fellow church member. "It
was such a huge sacrifice," he thinks.
He realizes he's become pretty passionate about this stuff.
But he still hasn't found biblical guidance.
That night at home he goes to his bedroom and picks up his
Bible. He sits down on the bed and speaks into the silence.
"Lord, there has to be something in this book of yours
about this," he says.
He opens to a verse he hadn't considered before. Romans
12:1. He reads these words from Paul's letter: "Give
your bodies a living sacrifice."
Paul may have meant something else when he wrote it, but
to Johan it now feels important to donate his organs after
death. "Jesus sacrificed himself for everyone - gave
his whole body for all mankind." The least we can do,
he thinks, is give part of our body to someone else in need.
Finally he has what he's been looking for.
* * *
Today, 14 months after his surgery, Arie Pach, now 57 years
old, is living a new life of freedom - sort of. His youngest
son is getting married this summer, and Arie will be there
under the wedding canopy.
But he's told he'll have to take immunosuppressant drugs
for the rest of his life. And he's photosensitive; he can't
go out in the midday sun much and finds himself missing
a day at the beach. He used to like to swim, but now, on
doctors' orders, he has to beware of contracting an illness
by going to public pools.
"I'm more philosophical and more resigned about my
own fate," he says on a cool afternoon at home, where
pastel flowers are in bloom in the tiny backyard garden.
"There are so many things in life that could have been
worse, but thank God I'm fine now," he says. And even
though he has a new kidney from across the world, he's still
searching for a better solution. "I haven't become
religious," he says, "but I guess you could say
I pray more, to ask for a refuah shlema - a full healing."
Epilogue
As far as investigators know, the syndicate that orchestrated
kidney swaps for at least two yearsin Durban between Brazilians
and Israelis is dismantled. But the global trade - and the
debate about it - rolls on.
In South Africa, four alleged syndicate members have been
charged and await trial. Johan Wessels and Captain Helberg
and his team have expanded the investigation to hospitals
in Johannesburg and Cape Town.
In Brazil, Captain Ivan is one of 28 ringleaders who have
been indicted. In all, some 50 cases are being investigated
by a parliamentary committee, which is expected to submit
its findings in September. Hernani has been helping, despite
receiving death threats. When he testified before Parliament
in January, he wore sunglasses and a shirt up over most
of his face to hide his identity.
Daisy, meanwhile, has made up her mind to leave him - as
soon as she can raise the money to support herself and their
children. At one point, she considered selling a cornea.
She's heard the going rate is nearly $30,000.
Around the world, meanwhile, organ-sale laws are shifting.
In Israel, for instance, one proposed law by the Ministry
of Health aims to halt the country's involvement in the
trade by targeting organ brokers - including penalties of
up to three years in prison. Another proposal would allow
voluntary organ donors to have all of their related healthcare
costs picked up, as well as compensation for lost time at
work when recuperating from the surgery. Others in Israel,
such as Friedlaender, argue that the government should set
up a fund to give substantial compensation to those who
volunteer to be living donors.
In the US, Wisconsin recently became the first state to
give living donors a tax deduction of up to $10,000, to
write off lost salary, and medical and travel costs. At
least 14 other states are considering similar measures.
And in April, President Bush signed the Organ Donation and
Recovery Improvement Act, which reimburses living donors
for expenses incurred during the process and funds research
projects aimed at increasing donations.
But laws may not keep pace with a global market moving at
the speed of commerce. There is, for instance, skyrocketing
demand for pieces of livers, which can grow into a fully
functioning organ in a recipient. Now a website - liver4you.org
- promises "transplant surgery in as short as 10 days"
in the Philippines.
Sitting in his office in Jerusalem, Friedlaender points
to a small trinket hanging from one of his bookshelves.
One of his patients brought it to him a couple of months
ago after going abroad to get a new kidney. It's from a
country that may already have replaced South Africa as a
hot spot for body-part trading.
It's a red paper lantern from China.
Editor's note
This report was written as a nonfiction narrative. Specific
scenes and dialogue are based largely on recollections of
those who participated in the kidney-transplant trade, but
did not know then it was illegal in South Africa. The reporting
was done over five months in four countries.
Correspondent Andrew Downie flew to Recife, Brazil, and
met with Hernani Gomes da Silva and his wife, Daisy, four
times over four days, reconstructing what happened. Later,
he confirmed more facts and details by phone with the da
Silvas, their attorney, and Brazilian police.
The Monitor paid Mr. Gomes da Silva its standard photo fee
for use of a picture of him with his Israeli kidney recipient
in South Africa. Normally, the Monitor does not pay interview
subjects for information to avoid conflicts of interest.
In this instance, that risk seemed marginal.
Staff writer Abraham McLaughlin went twice to Durban, South
Africa. He spent four days meeting with police and investigators
and visiting St. Augustine's Hospital. From South African
court documents, and a photo provided by Hernani, the Monitor
tracked down the Israeli recipient of Hernani's kidney.
But the recipient declined to be interviewed by staff writer
Nicole Gaouette. In Jerusalem, staff writer Ilene R. Prusher
met twice with Arie Pach and his wife, Mary, who were willing
to relate their experience. They also spoke nearly a dozen
times on the phone.
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